SLEEP DISORDER RESOURCES
Think Your Tired Might Be Different?
An estimated 50 to 70 million people in the United States alone have a sleep disorder, yet the majority remain undiagnosed. Sleep disorders are serious medical conditions that should be evaluated and treated by a qualified sleep specialist.
Sadly, getting a sleep disorder diagnosis is often not a straightforward journey. I’ve curated resources and organizations I trust to help make that journey a little easier.
If your tired feels different, trust that instinct. You deserve answers, and the right diagnosis and treatment can change your life.
Start here
Take a Sleep Disorders Assessment
This is a quick self-assessment that can help identify signs and symptoms associated with 13 major sleep disorders. The online assessment takes approximately three to five minutes to complete, and you’ll receive a summary of your results that you can share with a healthcare professional.
Consult a Sleep Specialist
Consulting with a board-certified sleep specialist is an important step when evaluating a possible sleep disorder.
In the US: The American Academy of Sleep Medicine accredits sleep centers that meet established standards for high-quality sleep care.
Your journey will likely begin with your primary care physician. Not every doctor is knowledgeable about sleep disorders. It is okay to ask your doctor directly for a referral to a sleep specialist.
Contact the Sleep Helpline
A free US resource offering personalized support to people experiencing sleep issues or navigating a sleep disorder. Resource Specialists can provide trusted information and help you understand possible next steps.
The Sleep Helpline also supports caregivers, healthcare providers, educators and anyone looking for reliable information about sleep disorders.
Outside the United States?
The World Sleep Society maintains a list of sleep medicine organizations around the world. Find the organization serving your country or region for local information about sleep specialists and sleep centers.
Trusted Sleep Disorder Resources
Organizations offering clear information, helpful resources and support as you figure out what comes next.
Project Sleep
A patient-led advocacy organization raising awareness about sleep health, sleep equity and sleep disorders. Resources cover a wide range of conditions, including sleep apnea, narcolepsy and idiopathic hypersomnia, and feature helpful toolkits for navigating diagnosis, treatment, and everyday life. The Rising Voices program trains people with sleep disorders to share their stories.
Hypersomnia Foundation
Nonprofit organization providing information and support for people living with idiopathic hypersomnia and related sleep disorders, including narcolepsy and Kleine-Levin syndrome. Resources cover symptoms, diagnosis, treatment, research and tools for navigating medical care, school, work, and daily life. They also maintain an international directory of healthcare professionals.
Alliance of Sleep Apnea Partners
A patient-centered nonprofit serving people living with sleep-disordered breathing and obstructive sleep apnea. Resources include practical information about getting diagnosed, understanding treatment options and living with sleep apnea, while advocating for care that better reflects what patients actually need.
Circadian Sleep Disorders Network
A patient-led nonprofit supporting people with chronic circadian rhythm sleep disorders. It offers educational materials, treatment information, practical support, and resources related to accommodations at work and school.
Restless Legs Syndrome Foundation
A nonprofit organization providing evidence-based information about RLS symptoms, diagnosis and treatment. Also offers provider directories, support resources, educational programs, and updates on the latest RLS research.
Wake Up Narcolepsy
A nonprofit organization dedicated to advancing narcolepsy awareness, education, and research. Resources include information about diagnosis and treatment. The organization also offers free online support groups for people with narcolepsy and their families.
Learn more about Lindsay
Lindsay Scola is a sleep expert, speaker and writer working to change how we think about sleep and close the sleep-disorder diagnosis gap.
These resources are provided for educational purposes and are not a substitute for individualized medical care.